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Systemic Lupus Erythematosus

Systemic lupus erythematosus is the best-known form of lupus, in which the immune system attacks several organs at the same time: skin, joints, kidneys, heart. Each person has their own picture.

This can mean:

  • very significant fatigue, sometimes overwhelming,
  • joint pain, redness in the sun,
  • unpredictable flare-ups, followed by calmer phases,
  • sometimes more serious effects (kidneys, heart, blood).

"You don't look ill" is one of the most hurtful things to say to someone living with lupus. The illness is barely visible, but it is very much present.

Systemic Lupus Erythematosus: a situation that can affect energy, communication or mobility; needs vary from one person to another.

Possible accommodations

Personalised adjustments: flexibility, visual supports, assistive tools, human support.

Explanations based on your profile

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Systemic Lupus Erythematosus explained to a Child

0–12 years old

Lupus is when the body defends itself against itself, a bit as if its guards (its internal army) got confused and attacked the good parts of the body instead of protecting them.

This can make you very tired, cause joint pain, and bring on redness especially in the sun. It is different for each person.

The illness changes over time: sometimes it is very hard, sometimes it gets better. But it stays there, even if you can't see it on someone's face.

  • It is invisible, but it is very real for the person who lives with it.
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Living with the Systemic Lupus Erythematosus: the context set, the conversation freed.

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