myHandiQR myHandiQR

Cerebral palsy

Cerebral palsy results from an injury that occurred very early to a developing brain, before, during or shortly after birth. It mainly affects the control of movement, posture and muscle tone, to very variable degrees from one person to another.

Some people walk, others get around in a wheelchair; some speak easily, others find another way to communicate. What does not change is that the injury does not progress over time and that, on its own, it says nothing about the person's thinking abilities.

Hesitant speech, movements that go off course, a face that tenses with effort: too often, people conclude that understanding follows the same chaotic path. With cerebral palsy, this is rarely the case, and this misunderstanding is one of the most hurtful.

The person hears, thinks and decides, sometimes faster than the answer can come out. The body takes time to carry out what the mind has already worked out. Having to correct this misjudgment with every person, again and again, wears you down as much as the disability itself. Saying it once, calmly, avoids having to prove it endlessly.

Beyond movement, what is at stake

Reducing cerebral palsy to a motor difficulty misses the essential: the constant effort it demands and the way others look at the person, which they have to face.

  • controlling a simple movement can require significant concentration and energy;
  • speech can be slowed or hard to articulate without the ideas being affected;
  • fatigue sets in quickly, because the body is constantly working to stabilise posture;
  • physical appearance often leads those around to underestimate the person or speak for them.

What helps in daily life

The point is to allow time and means of expression, without deciding in the person's place.

  • allow time to answer and do not finish their sentences for them;
  • speak directly to them, never to their companion as if they were not there;
  • accept the communication or mobility tools they use as extensions, not as limits.

Possible accommodations

Accommodations aim to make up for the motor effort while preserving the freedom to decide.

  • At school: extra time for written work, use of digital tools or a scribe, support from an AESH (a teaching assistant for students with disabilities, in France) and a framework set by a PPS (an individualised schooling plan for students with disabilities, in France) to adjust expectations without lowering intellectual standards.
  • At work: an adapted workstation and tools, hours that take fatigue into account, remote work when possible, with the RQTH (official recognition of disabled worker status, in France) making these adjustments easier with the employer.
  • In daily life: accessible environments, patience in exchanges and recognition of the chosen means of communication, so the person stays in charge of their interactions.

Explanations based on your profile

Choose a profile to read the matching explanation.

Cerebral palsy explained to a Child

0–12 years old

When we are born, the brain learns to make the body move, like a conductor telling the arms and legs what to do. Sometimes the brain has trouble giving these orders, and movements become harder or slower, a bit like walking through wet sand.

The person may need more time to speak, walk or grab things. Their muscles work harder. But their mind understands very well! They think, they learn, they have lots of ideas, it's just the body that needs a little more help.

It's not a condition that gets worse: the person grows up with it, and learns plenty of ways to do what they want, even with a body that works differently.

Help others understand

Living with the Cerebral palsy: the context set, the conversation freed.

You write your profile just once. At every new school year, every new team, every new caregiver, you share the QR code, no need to start over from scratch. The conversation continues, it just begins from a different point.

Create my account See pricing

✓ 3 months free trial   ✓ No card required   ✓ Stop your subscription in 1 click