Articles / Family and caregivers
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Grandparents and invisible disability: helping them understand without dramatising
Another generation, other reference points. How to convey the way a child works to grandparents without weighing the relationship down.
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Invisible disability: 6 tools families already use every day
Communication logbook, handwritten note, MDPH card, medical bracelet, sunflower lanyard, shared apps: an inventory of the 6 tools families already use to stop having to re-explain …
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The Burden of Explaining: The Mental Load of Invisible Disability
The burden of explaining refers to the ongoing work of describing a disability to every new person you meet. For disability, it is one expression of the mental load. This article e…
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Holiday club and dyspraxia: what the activity leaders need to know
Leisure center and dyspraxia: 5 pieces of information to give activity leaders in 30 seconds so a day of activities stays a good memory.
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First MDPH (the French disability rights agency) application: where to start when you don't have all the paperwork
First MDPH (the French disability rights agency) application: the most important item is not a certificate, it is the life plan. Here is where to start, even without all the paperw…
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Medical waiting room and autism: avoiding the sensory meltdown
Medical waiting room and autism: preparing the appointment, the sensory kit and the briefing for the practitioner so that a consultation remains possible.
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First AESH meeting: 5 things to prepare as a parent
First meeting with the AESH (a teaching assistant for students with disabilities, in France): what to prepare to save time, avoid misunderstandings and get support that is truly ta…
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Parental mental load: what we don't always admit
The mental load of a parent of a child with specific needs is rarely named. Yet it is one of the most structuring dimensions of family life. A few avenues to make it visible, and t…
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Coordinating your contacts without becoming the bottleneck
Doctor, psychologist, school, MDPH (the French agency that handles disability rights and benefits), extended family, after-school activities. The parent of a child with specific ne…
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Shared custody: one common profile, two homes
Shared custody multiplies the contexts: two houses, two ways of organizing things, sometimes two schools. A common profile, shared by both parents, makes sure the child does not re…
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Siblings: their place in the shared profile
The siblings of a child with specific needs often hold an invisible place in the family story. A shared profile can, with discernment, include what the brothers and sisters experie…
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Guardianship and curatorship, making administrative steps easier without re-explaining everything
Administrative procedures call on the carer at every appointment. A profile shared by QR code lets the officer or the employer understand the situation quickly, without a one-hour …
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