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Paraplegia

Paraplegia refers to a paralysis affecting the lower limbs and, depending on the level reached, part of the trunk. It most often follows an injury to the spinal cord, of accidental origin or linked to an illness.

Beyond the inability to walk, a whole part of the body no longer transmits the same information: sensation, sometimes control of the bladder or bowel. The person reorganises their autonomy around the wheelchair, without this affecting their mind, their professional life or their social life.

Paraplegia is often summed up by the image of the wheelchair and the idea of no longer walking. Daily life, though, plays out in details that non-disabled people do not even notice: a 15 centimetre step in front of a shop, toilets that are too narrow, a broken lift that turns a simple trip into a puzzle.

Paraplegia is not just a matter of legs, it is a matter of environment. Where space is designed for everyone, the disability almost fades away; where it is not, it resurfaces at every obstacle. Explaining these concrete needs at each place, to each person, in each new situation becomes a chore. Setting them out once and for all frees up a great deal of energy.

What paralysis changes beyond walking

Thinking of paraplegia only in terms of legs makes you forget everything that plays out lower and further than the eye reaches.

  • the loss of sensation exposes the person to injuries they do not feel coming (prolonged pressure, burns, friction);
  • control of the bladder and bowel often requires a rigorous and discreet organisation;
  • fatigue is real, because getting around in a wheelchair and compensating place heavy demands on the upper body;
  • access to places conditions everything: a detail of architecture can make an activity possible or impossible.

What helps in daily life

A paraplegic person's autonomy depends far more on the environment than on their abilities, which remain whole.

  • check the real accessibility of a place (entrance, toilets, circulation) before suggesting a meeting or an outing;
  • let the person manage their own movements and transfers rather than stepping in without being asked;
  • provide times and spaces that do not force constant workarounds.

Possible accommodations

Accommodations are mainly about accessibility and organisation, rarely about permanent assistance.

  • At school: accessible premises, ground-floor classrooms, equipment at the right height and support from an AESH (a teaching assistant for students with disabilities, in France) if needed, all framed by a PPS (an individualised schooling plan for students with disabilities, in France).
  • At work: a workstation accessible by wheelchair, adapted toilets, reserved parking and flexible hours for care, with the RQTH (official recognition of disabled worker status, in France) opening up access to these accommodations via the MDPH (the local disability rights office, in France).
  • In daily life: anticipate the accessibility of places and transport, and let the person decide on the help they want, or not, rather than acting in their place.

Explanations based on your profile

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Paraplegia explained to a Child

0–12 years old

Paraplegia is when the legs no longer work, but the arms and the head work just fine! It is as if the legs needed special help to get around.

The person uses a wheelchair to go everywhere: to school, to play, to do sports. That chair is like magic legs on wheels! With their arms, they can push the chair, eat, give hugs, draw, everything you do.

Sometimes the skin or the feeling in the legs is different, and grown-ups need to be careful. But someone in a wheelchair can do almost anything: go to school, have friends, play, work later on. It is just another way to get around!

Help others understand

Living with the Paraplegia: the context set, the conversation freed.

You write your profile just once. At every new school year, every new team, every new caregiver, you share the QR code, no need to start over from scratch. The conversation continues, it just begins from a different point.

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