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Tourette syndrome

Tourette syndrome shows up through tics, involuntary movements or sounds that arise without one really being able to hold them back. These tics evolve over time: they change form, intensify at certain periods and ease off at others.

Contrary to the image conveyed by films, involuntary swearing is rare and affects only a small share of people. Most often, it is blinking, throat clearing, or movements of the head or shoulders.

Just before a tic, many people describe a sensation that builds up, like an internal itch or the urge to sneeze: a tension that grows as long as the movement has not happened. Performing the tic relieves it for a few seconds, then the tension returns.

You can hold back a tic for a while, in a meeting or in class, but this effort is exhausting and the release that follows is only stronger for it. Asking someone to "stop their tics" is like asking them not to blink for an entire day.

Beyond the cliché

Tourette syndrome is often reduced to a caricature, whereas the most common tics are subtle. They frequently come with a strong sensitivity to stress, fatigue and the gaze of others: the more attention is drawn to the tics, the more they tend to increase. Many of the people concerned are also creative, sharp and full of humour.

What helps

  • not commenting on or imitating the tics, not asking for them to be suppressed,
  • allowing discreet breaks to release the built-up tension,
  • reducing stress and performance pressure, which amplify the tics,
  • providing an easy way out during periods when the tics are intense.

Possible accommodations

Depending on age and the intensity of the tics, several supports are possible:

  • At school: a support plan (PAP, a school support plan for students with specific needs, in France) or a project (PPS, an individualised schooling plan, in France), extra time, the option to leave the classroom, assessments in a quiet setting.
  • At work: RQTH (official recognition of disability status, in France, via the MDPH, the local disability office) for a quiet workstation, flexible hours or a recovery space.
  • In daily life: low-stress environments, regular sleep, people around who do not focus on the tics.

Explanations based on your profile

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Tourette syndrome explained to a Child

0–12 years old

Tourette syndrome is like the body making movements or sounds on its own, without anyone deciding to.

Imagine your body sometimes getting "hiccups": blinking fast, making faces, moving the head, or making little odd noises. It comes in waves, like waves at the beach, and the person can't really stop them, it's like trying to hold back a sneeze!

  • These movements or sounds can repeat several times a minute
  • They change depending on whether someone is stressed, tired, or upset
  • The person doesn't do them on purpose, they don't get to choose

Holding back these tics is very tiring. It's like trying to stay completely still for a long time: in the end it's too hard and you have to move!

Real cases: Tourette syndrome

use case

Adult with Tourette syndrome, age 32
The person themselves → Client contact, colleagues
Verbal or motor tics are understood without awkwardness or negative interpretation, right from the start of a meeting.

QR location: Card placed on the table during a client meeting

See the case in detail
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