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Deafblindness

Deafblindness brings together in one person a significant impairment of both sight and hearing. The two channels through which information and the link with others usually pass are affected together, which places touch at the centre of communication and orientation.

The degree varies a great deal from one person to another: some keep some remaining sight or hearing, others do not. In every case, the meeting with the outside world is built through contact, movement and stable landmarks, and the presence of others must be signalled so as not to appear out of nowhere.

You do not get the attention of a deafblind person by waving a hand or calling from a distance: you make contact through touch, a hand placed gently on the shoulder or forearm. This gesture, which signals a presence, replaces the met gaze and the hello called out at the entrance to a room.

From this contact, communication can take various forms: signs traced in the palm, tactile sign language, the alphabet on the hand, large high-contrast print for those who keep some remaining sight. The common thread stays the same: say who you are when arriving and give notice when leaving, otherwise the conversation breaks off without explanation for the person.

A world perceived through contact

When sight and hearing are missing together, information no longer comes spontaneously to the person: it is they who must go and find it, or that must be brought to them through other channels. Space, movement and exchanges then reorganise around touch and reliable landmarks.

  • Knowing who is present and who is speaking requires being actively informed.
  • Moving in an unfamiliar place calls for guidance and constant points of reference.
  • Each exchange demands sustained concentration, hence quick tiredness.
  • Isolation looms as soon as those around forget to keep contact.

What keeps the connection

Simple codes, shared by those around, are enough to make exchanges fluid and reassuring. The regularity of these gestures matters as much as the gestures themselves.

  • Touch the hand or shoulder before speaking, to signal your presence.
  • Introduce yourself every time and announce your departure.
  • Keep living spaces arranged in a stable way, without moving the landmark objects.
  • Rely on the channel that works best for the person (touch, remaining sight or hearing).

Possible accommodations

Support rests on adapted guidance, tactile or high-contrast materials, and the presence of people trained in this specific communication.

  • At school: support from a trained AESH (a teaching assistant for students with disabilities, in France), tactile or large high-contrast materials, and a PPS (a personalised schooling plan, in France) coordinating those working around the student.
  • At work: an adapted workstation with technical aids, the use of a tactile-communication interpreter depending on the situation, and the support of an RQTH (recognition of disabled-worker status, in France) through the MDPH (the departmental disability office, in France) to fund the adaptations.
  • In daily life: a stable and well-organised environment, guidance for new journeys, and those around consistently applying the contact codes.

Explanations based on your profile

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Deafblindness explained to a Child

0–12 years old

Imagine you could not see well or hear well at the same time. It is as if two of your superpowers for understanding the world around you did not work very well. It makes things harder, but it is not impossible!

People in this situation use their hands a lot to talk and understand. You can write in their palm, make signs they can feel, or simply touch them so they know you are there.

It is important to always let the person know: say "it's me" before talking to them, or hold their hand so they feel you arriving. These small, simple gestures make everything easier and more reassuring for them.

Yes, it is tiring for this person, because they really have to concentrate to understand. But they can still have friends, play, and live lots of adventures!

Help others understand

Living with the Deafblindness: the context set, the conversation freed.

You write your profile just once. At every new school year, every new team, every new caregiver, you share the QR code, no need to start over from scratch. The conversation continues, it just begins from a different point.

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